Rob’s Blog – 01/06/2026

Gosh, what a weekend it’s been! Sunday saw me hardly moving at all — I slept the entire day away and was back in bed by 8:30 pm, only to sleep right through the night. The fatigue I’ve been experiencing is remarkably powerful.

I’m hoping today will be different. I’ve had a look at my diary, and thankfully, there’s nothing pressing that can’t wait until tomorrow. With any luck, I’ll have a bit more energy then. I’ve truly never felt fatigue like this before.

It’s hard to believe it’s June already — just 23 days until my last chemo session! The light at the end of the tunnel is getting brighter.

Today’s a bit cooler, so I reckon Nellie Paws will be alright for a walk. Fresh air will do me good; I really need to get moving. I have a pick flush scheduled for this afternoon, so after my hospital visit, I might squeeze in a stroll.

The consultation did mention that the week following chemo is typically a recovery week, and that fatigue is perfectly normal. Honestly, this fatigue has completely taken me out. It drains not just the body, but also leaves the mind feeling incredibly tired.

Starting a Monday with chemo fog and fatigue isn’t the easiest, but the important thing is that we have a Monday, and we should be grateful for that as we navigate this cancer journey.

So, today I’ll just have to roll with it and wait for this fatigue to lift.

I need to get my routine sorted:

1. Shower

2. Breakfast

3. Make the bed

4. Quick tidy-up of my bedroom, which, surprisingly, has turned into a bit of a mess despite my weekend of rest. How did that happen?

I think I’ll go for porridge this morning with a nice cup of tea. 😂

This week, I’ve set myself some tasks to complete — it’s all part of my approach to living with cancer. Last week, I made a mental shift by choosing not to refer to my condition as “palliative chemo” or “end-of-life care.” That language felt like waiting to die. Instead, I now call it “living with cancer,” which helps me feel like I still have a life. Yes, it’s different from my pre-diagnosis life, but it’s still a life filled with personal and professional goals. I intend to live it alongside Harold — my tumour.

Yes, I’ve named my tumour Harold; he’s now part of my cancer family, along with Lady P and Parker.

This is my way forward: living with cancer while striving to make the most of the life I have.

On that note, I think it’s time for that shower!